Seems about time for my update. Physically, it’s been tough. The paralysis, seizures, vertigo, and hallucinations took a toll. I’m happy to report all but the paralysis is under control. My doctors continue to be amazed that I have no bone pain. I’m 10 years into stage IV prostate cancer and have no bone pain. It’s unheard of. I’m hoping it means I get a little more time on the back end.
Emotionally I haven’t been doing as well. I’ve been home just three months and am going crazy, seriously crazy. I’m trapped in this bed. I can’t even roll over to sleep on my sides. I can reach about 2 square feet of space. We have a device caller a Hoyer that’s basically a lift to get me out of bed. The problem is it’s very painful for me to use and the loaner wheelchair isn’t particularly comfortable. (Still waiting on the custom fit wheelchair three months running). So I wake up to spend all my days in the room. Don’t get me wrong. It’s a nice room 77″ tv, one wall all glass looking outside. Still most mornings I wake up crying. I get over it quickly enough, but it’s hard.
After the doctor told be I had six months to live, plus or minus, I sent out a text to all my friends whose text I have who might like to see me. I’ve been pleased by the response so far. If anyone would like to come to Jacksonville Florida to see me, just drop me a line with your cell number.